Optic nerve hypoplasia (ONH) is a congenital disorder characterized by underdevelopment (hypoplasia) of the optic nerves. According to National Organization for Rare Disorders; “Children with ONH may have brain malformations and pituitary problems … Abnormalities of structures of the brain may include hypoplasia of the corpus callosum (nerve fibers that connect the two hemispheres of the brain), underdeveloped nerve fibers (white matter) in any other location, and abnormal migration of neurons to the surface of the brain (cortical heterotopia).” Some children who are diagnosed with ONH have typical intelligence while others have learning disabilities and developmental delays. The cause of ONH is not completely understood.
It’s important that immediately after being diagnosed with ONH, you enroll your child in early intervention services to help overcome their perceived limitations and help build confidence for their future.
Early Intervention Is Critical and Here’s Why
Young children who are blind, visually impaired or have multiple disabilities increase their visual functioning, sensory awareness, communication and social skills in our early intervention program. Also, our services improve children’s physical, cognitive and emotional development. We help families become successful advocates for their children’s education and care. Children ages birth to 3 receive home visits. Children ages 4 to 6 participate in quarterly events. Our early intervention specialists collaborate with family members, medical professionals, caregivers and teachers.
Here’s What You Can Do Right Now
Download our 6 step helpful checklist if you have a child who’s blind, visually impaired or living with multiple disabilities.