Babies Count is a national registry of young children, birth to 36 months of age with visual impairments and Wayfinder’s Blind Babies Foundation program was a founding member. This registry works in conjunction with public and private agencies to collect standardized epidemiological and demographic data regarding children, their visual conditions and the systems created to…
FOCUS Families is a national, non-profit organization dedicated to providing information, education and support to families whose children are affected by rare septo optic dysplasia and/or optic nerve hypoplasia. Headquartered in San Diego, California, the organization distributes current medical literature on the visual disorder ONH; provides information on community resources; conducts annual national conventions in…
Albinism can affect vision in multiple ways. NOAH (National Organization for Albinism and Hypopigmentation) has a special “New Parent Program” for families who have recently received an Albinism diagnosis for their child. NOAH’s mission is to act as a conduit for accurate and authoritative information about all aspects of living with albinism and to provide a place where people…
Parents are the most critical members of an early intervention team! PAIVI (Parents and Their Infants with Visual Impairments, 2nd Edition), written by Deborah Chen, Gail Calvello and Clare Taylor Friedman, is an updated version of the original Parents and Visually Impaired Infants (PAVII). This set of materials is designed to help parents and teachers…
Learn more about Cerebral Visual Impairment, the most common cause of visual impairment in children. This information is brought to you by Wayfinder’s Blind Babies Foundation program,which has been offering early intervention services to children with visual impairments and their families for 70 years. Follow #WayfinderRecommends and @wayfinderfamily on Twitter and Facebook during #BlindnessAwarenessMonth for…
